Thursday, July 20, 2017

update

Hi everyone!

Well, the good news is that the medicine stopped the bleeding after the very first dose!  Fantastic!  I've been on it a week now, and no bleeding since that first dose.  Other symptoms are either better or gone, except I still tend to have loose stools.  I'm still working to determine if specific food(s) contribute to that, but my 'can eat' list is so small due to it, it makes it hard.

Day at a time.  Day at a time.  :)

Sorry, still not 'into' blogging at this time.  Hope to break out of that doldrums soon.

Thanks for your thoughts and prayers.  :)

Wednesday, July 12, 2017

Finally, official diagnoses...

Sorry I haven't been around the past week.  My symptoms have gotten a tad worse, and leaves me not very talkative.

Well, I finally got back in to see the GI and get my official colonoscopy biopsy reports.  (he had postponed the visit 2+ weeks due to a family emergency on his end.)

Just a TMI warning:




Nope, not 'just' irritable bowel.'  I wish.

The official list is:

1.  chronic ulcerative proctitis.  That is, basically, the 'start' of ulcerative colitis, because that always starts in the rectum.  (I warned you.)
2.  asymptomatic diverticulosis.  (goodbye, beloved cashews and sesame seeds, as well as almonds and basically ALL nuts and seeds...)
3.  First degree internal hemorrhoids.

Yeesh.  The holy trinity of bleeding poop.  :(

So, this is a chronic disease, meaning it is never cured, it only goes into remission, if I am lucky and my body can handle the medication.  (I have a pretty less-than-stellar history with meds.)  I'm on 2-3 months of nightly suppositories.  HOPEFULLY I can handle that, as rotten as it sounds.  (it could've been SO SO much worse though.  I realize that...)

He then said, 'if that clears it up/your symptoms up, then you will have a choice.  To stay on them and move to a maintenance regime, or roll the dice and stop using them all together and hope it doesn't reoccur.'

Um, if the medicine works and I can tolerate it enough that it doesn't cause unbearable problems, I'm on that shit for LIFE.  Let me tell you.  The prospect of sticking something up my ass 2-3 times a week for my remaining life is of course not ideal, but it beats the alternative, because when this returns/flares, it is always worse.  And higher up, starting to affect the entire colon.

Saturday, figuring from my newer symptoms that this was going to be the case, and researching, I (once again) gave up grains.  And sugar.  And alcohol.  And now also dairy.  And caffeine (oh, an occasional glass of iced tea I don't think will hurt me.  But by no means daily.)  And now, as of last night, nuts and seeds too.

I start the medicine tonight.

Yay. Joy.  Can't wait.

Still, not feeling very talkative. I have to wrap my head around this change, and work seriously hard on anxiety (about meds not being tolerable) and some mild depression.  I don't know what my blogging will be like in the next couple of weeks...either here or visiting you.  I seem to just want to crawl into my proverbial cave, and watch TV / read.  :(

Anyhow, I seriously think this came about because I was over 2 years mostly grain free and sugar free, and when I STUPIDLY came off the plan, over the past 1.5 years, by body progressively rebelled.  Until it got to this point.  Well now, the thought of grains, dairy, or alcohol means serious, serious problems.  Up to and possibly including losing my entire colon and having a 'bag' for life.  No thank you.  I'm FINALLY listening to my body and altering my course appropriately.

AT least I know doing this, I'll be back to a good normal weight by Thanksgiving.  :)  Silver lining and all.

So that's where I stand.  I appreciate your support.  I will try to drag my psyche out of the cave and out and about here and in the blog world more often.  Stop wallowing in self pity and fear.  THAT is bad for UC/UP as well.  And I realize it could've been SO.MUCH.WORSE.

Love you guys!

eta:  well, I see I've lost one follower since this post.  Okay....

Sunday, July 2, 2017

happy 9th birthday!

My middle grandson had his 9th birthday party yesterday.  He has just gotten into Harry Potter, so that's what the Harry Potter glasses are all about.  LOL  We had a wonderful time!!

with his mom, my youngest daughter...


In front of all his loot...



Wednesday, June 28, 2017

common misconception

There is no denying that it is extremely hot in Arizona between June and into October...

However, that doesn't mean it's hot all year round.  Surprisingly, it can get cold in the desert in the winter.  Since we are retiring there in a couple of years, I thought I'd look it up, and here is what I found:

Average Temperatures in Phoenix

The average Phoenix temperatures listed here are derived from data for the years 1980 through 2016 provided by the National Weather Service.

January Weather
Average temperature: 57
Average high temperature: 67
Average low temperature: 46
Warmest ever: 86
Coldest ever: 29
Average precipitation: .91

February Weather
Average temperature: 60
Average high temperature: 71
Average low temperature: 49
Warmest ever: 92
Coldest ever: 28
Average precipitation: .92

March Weather
Average temperature: 65
Average high temperature: 77
Average low temperature: 54
Warmest ever: 100
Coldest ever: 38
Average precipitation: .98

April Weather
Average temperature: 73
Average high temperature: 85
Average low temperature: 60
Warmest ever: 105
Coldest ever: 40
Average precipitation: .27 

May Weather
Average temperature: 82
Average high temperature: 95
Average low temperature: 69
Warmest ever: 113
Coldest ever: 50
Average precipitation: .11

June Weather
Average temperature: 91
Average high temperature: 104
Average low temperature: 78
Warmest ever: 122
Coldest ever: 60
Average precipitation: .02

July Weather
Average temperature: 95
Average high temperature: 106
Average low temperature: 83
Warmest ever: 121
Coldest ever: 68
Average precipitation: 1.05

August Weather
Average temperature: 94
Average high temperature: 104
Average low temperature: 83
Warmest ever: 116
Coldest ever: 64
Average precipitation: 1.0

September Weather
Average temperature: 88
Average high temperature: 100
Average low temperature: 77
Warmest ever: 112
Coldest ever: 57
Average precipitation: .64

October Weather
Average temperature: 77
Average high temperature: 89
Average low temperature: 65
Warmest ever: 106
Coldest ever: 44
Average precipitation: .58

November Weather
Average temperature: 64
Average high temperature: 76
Average low temperature: 53
Warmest ever: 96
Coldest ever: 35
Average precipitation: .65

December Weather
Average temperature: 55
Average high temperature: 66
Average low temperature: 45
Warmest ever: 84
Coldest ever: 26
Average precipitation: .88

So see?  Decent winter temps; not sizzling hot all year long.

That's all I got.  :)

Monday, June 26, 2017

'twas a busy weekend!

Every year, I am gifted a large frozen turkey for a Xmas gift from one of my vendors.  It is always delivered the week of Xmas.  However, since it always arrives so 'late' (in regards to planning the Xmas meal, on the rare years I host it), and I can't ever assume I will be getting it, it never gets cooked at Xmas.  Usually, I do it in March after the NFL playoff 'season' is over.  I wasn't feeling well enough at that time this year to be bothered.

But by early this month, I was sick of it still in my freezer.  So we decided to cook it this past Saturday.  I invited the whole family; my mom came, as did my younger daughter, her hubby and my two youngest grandkids.  We had a ball.  It was all delicious, but I understand why it's easier to cook in November or December when the weather is cooler.  LOL

Then yesterday, I moved winter clothes (such as they are in Southern CA, LOL) to my 3rd bedroom closet, washed my car, did the laundry, did the gardening.  On a 90 degree day.  After cooking a turkey dinner with all the trimmings the day before.  I was pooped.  I spent the whole afternoon on the couch watching TV.

So a very full, but fun weekend.  Now I have a week's worth of delicious food, and another (smaller) container of extra turkey we will be freezing for a month or two from now.  It's all good!

Hope you had a great weekend too!

Thursday, June 22, 2017

Yacht Rock returns: YAY




Yacht Rock has returned to Sirius radio!  FANTASTIC HALLILUAH NEWS!  (and no, this is not a paid/sponsored post.  I just love Yacht Rock -and Sirius- that much.)

For now until 7/6, it will be on channel 17.  Then, it moves to channel 13 through Labor Day weekend.

I wish to God it was YEAR ROUND.  It's that awesome.

Yacht Rock is soft rock from the lates 70's and 80's.  Think Doobie Brothers, Hall & Oats, Eagles, Fleetwood Mac, Kenny Loggins.  You get the drift!  Cool music for a hot summer.

So excited!

Tuesday, June 20, 2017